I was diagnosed with advanced lung cancer in January 2013. Right now, I am thriving on a medication that didn’t even exist three years ago. I’m using this blog to share some of what I have learned and, I hope, to educate and inspire others.
My goal is to share information about all aspects of life with lung cancer, while keeping things as brief and simple as possible. I’ll try to include links to help you find more detailed information. Some of my posts include personal stories and experiences, but this is primarily an educational blog, not a personal chronicle.
I should probably mention: I am not a doctor, nurse, attorney, social worker, or any other kind of professional on whom you might call in a health crisis! My blog posts simply represent the experience and accumulated practical wisdom (I hope!) of an engaged, educated patient who is always trying to learn more.
Your comments are always welcome!
I also have stage IV LC. I was diagnosed 3 years ago & I have had NED for 20 months now. I feel great! I will go back in April for a scan, & if that still shows NED, it’ll be almost 2 YEARS without any active cancer!! Keep the faith & laugh. It’s the best medicine! Great Blog by the way!
Beth, just wanted to applaud you for your efforts on this blog. I get to see your great analytic and writing skills in action in RPL but it seems that you will be doing a lot of good for people living with cancer and their loved ones with this project. Keep up the good health and the great writing–
I’m not very good with wordpress. I use samlmixon.blogspot.com I was diagnosed with stage 4 nsclc in November 2012. I love reading stories of other young long term survivors. Congratulations on your survival to date, and to many more! I’ll be keeping up with you on here now 🙂
Hi, I noticed that you mentioned that you do not have any of the genetic mutations (ALK, KRAS, EGFR) but I believe you said you’re thriving on crizotinib? Isn’t that an oral medication for people who have the ALK mutation? I am looking for hope and inspiration and to learn more for my mom who has been diagnosed with stage iv nsclc (adenocarcinoma). She is tremendously positive. I look forward to learning more. Thank you….
Jeanette, I have one of the less common genetic mutations, ROS1, which also responds to crizotinib. Has your mother had testing for genetic mutations beyond the Big 3? There are a number of less common ones.
I really appreciate you sharing your experience, it is such a help to those who are dealing — no, thriving, as your blog is aptly titled! — with lung cancer, as well as to their loved ones. I am wishing you continued progress in your own journey. Thank you for being such a blessing!